Helpful Resources
for family & loved ones of children with trisomy 13 & 18
Searching the web probably won’t give you the most encouraging or helpful information about trisomy disorders. The internet is filled with misinformation about trisomy disorders.
You can find some helpful resources here with more encouraging, updated, helpful, and accurate information. (More info coming soon!)
You can also request FREE informational pamphlets here which contain supportive medical information to give out to your medical team. These were designed to help advocate for your child and to encourage proper medical interventions, especially for those dealing with less-than-supportive medical teams.
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Trisomy 18 Foundation
Support for prenatal diagnosis:Supportive Facebook groups:
Trisomy 13 LIFE Support - Living with Patau Syndrome
Support Organization for Trisomy (SOFT)
Trisomy family stories:Palliative care support:
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